.
Now some of what I may write here will amaze some, offend others and make
some others still look at me anew. Who would have thought that I would take on
a medical specialist, a ward doctor, a ward senior nurse and come away knowing
that I would never allow my husband of 42 years to be placed within their
incompetent hands again? And this was at Darwin Private hospital.
I have to confess that my language was pro-fain, it modelled the language of
sociology and bureaucracy and it was delivered by a very angry me. Told in
spectacular style that silos of knowledge only benefit those with access to
those silos, and if they had been in education they would have been left behind
10 years ago. I am not proud of my performance and recognised that I used
language as shock treatment, but would not back up as the Specialist doctor said
he was now angry with me and my reply was that it was a two way street. I then
went onto outline the issues, using their words to show what was not happening
and the lack of processes, procedures, that they were lacking in checks and balances
and accountability that three people would be writing reports on this and I
could dial their numbers or he could listen to them now.
Let me explain, I arrived at the hospital at 3.23pm Tuesday to find George
drugged out of his mind through the relaxant drugs while he has for his
radiation treatment. It took three nurses that I called to for help to move him
from the toilet to the bed again, one session they allowed him to bang his head
into the door way on the left side again. This side peripheral vision is the
one that has been lost since his operation. I spoke to the Ward doctor about
having the medicine reduced to the lowest dose possible, and we agreed that it
was advisable to keep George in hospital a little longer to ascertain if the lower
dosage was correct. I left some three hours later feeling no reassurance in my
heart that all would be well with him. Thea who has been here the Friday before
and had seen firsthand that the dosage had knocked him out, had talked to the
staff at both centres but nothing had been done.
In the past ten days since starting radiation and chemo he has fallen twice
and has stitches in his left eyebrow and left upper arm, trying o get out of
bed to the toilet and being let slip off the toilet by a night nurse who stood
at the door while he attempted to position himself on toilet seat. This despite
a notice in the room that two people must be involved in movement of him at all
times.
Wednesday morning I woke at my usual 6am and was in tears almost instantly,
I knew that I had to see him again and talk to the D.V.A. sponsored program
people about their work with him once he came home. Cancelled my classes and
took a precious day off work, one of only three left to me.
Meeting time rolled around and no D.V.A program people so I set out on the
phone journey to find who to talk to and finally found out that the visit was
cancelled as George was to stay in hospital. Of course no one thought to tell
Goy or myself. Tried ringing the hospital and could find no one willing to tell
me where the discharge nurse was or how I could get her a message.
Drove to the hospital.
Entering George's room I found his breakfast meal with only one piece of
plain toast eaten, a mug full of milo granules!!!!! Undissolved tablets lay in
the bottom of a cup and all breakfast food still there at 1pm. This from a man
who starts the day with 9 tablets and proceeds to take more all day culminating
in those for chemotherapy. The catering manager was dragged up by the senior
nurse to explain the milo and I was amazed she could do it. The story was that
George had asked for milo granules so he could have milo drinks throughout the
day, despite having milo drinks for the past month delivered to him 4 times a
day by the food workers. George who walks with a quad stick with assistance
from others, would walk to the end of the ward, fill up a plastic glass with
hot water, drag his left leg carrying the water back to his room and make a
milo drink of water and milo. And that was without drugs in his system. I threw
my hands in the air, turned around and walked back into his room. George who
has family with him from day one till
Monday when Thea went home and who always had one of us with him for at least 4
– 6 hours a day.
I lost my temper in spectacular style, then Kieran arrived from work, George
reappeared from radiation drugged out of his mind because the Ward nurse had
not given him the lower dose or told the cancer clinic, so they had given him
the highest dose available and again he had no body functions, a lump of clay
would have had more animation and responses. The Ward nurse and two other
nurses tried to 'walk' George from bed to toilet to chair for his long overdue
lunch, the entire time saying lift your left leg George and tapping it while
holding him upright in a back of the shorts crutch destroyer hold. I was glad
that he had a male nappy on, otherwise he could have received damage to the
scrotum, why was he now in a male nappy, because as they said he is becoming
incontinent. No he is not; he was just drugged out of his mind.
Nick rang, Kieran talked through what had not be done and done, I cried over
the phone to Nick and we arranged to take George home Thursday. Thursday
afternoon arrived; we packed him up, picked up the armada of pills from the
chemist, paid for a basket of flowers thanking the staff to be delivered the
next day. Not an apology but a thank you for some good nursing and came home.
Friday the D.V.A nurse arrived, the taxi came to pick him up and deliver him
back from radiation therapy, I rang Goy at end of teaching to learn that the
doctor at radiation had asked George had he taken his tablet and of course
George who has no short term memory function left said no and I arrived back to
a drugged out husband. We had given him the tablet before I left for work and
Goy for shopping. When he recovered somewhat he said it was like being enclosed
in a large green cloud with red edges. Of course coming down off two doses
lasted till half midnight when I gave him a half sleeping tablet and he settled
into sleep
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